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Warm greetings from Bethany, W.Va.,
I know you get discouraged because the symptoms of HELLP syndrome are too often not recognized and babies and mothers are dying as a result, but I ask you to look at the picture from my 8-year perspective.
In 1995 when my daughter, Jennifer, was diagnosed with HELLP, she and her husband could find almost no information. There was one article on the Internet, but it was written in German. Jennifer and Steve researched medical books when their daughter was in NICU trying to learn more about HELLP, but even in medical books there was very little information.
Today, there are lots of articles about HELLP syndrome on the Internet, HELLP survivors have posted websites, the HELLP Syndrome Society continues to hear from hundreds of HELLP survivors each year, we have held two HELLP symposiums, our volunteers are educating people, a Preeclampsia Foundation has been formed, and the word IS getting out. My husband has questioned two young local med students who told him that they did, indeed, learn about HELLP syndrome in med school.
I encourage all of our HSS volunteers to keep educating everyone who will listen. If you have one of our t-shirts or sweatshirts, wear it to educate people. If you are comfortable with public speaking, volunteer to share your HELLP experience in the form of a program for a local service organization such as Rotary. You are making a difference, so keep spreading the word.
Judy
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