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From Lindsay
RLLLButler@aol.com (Minnesota) has written a poem that is being published in the "International Who's who in poetry" this year. Lindsay writes: My poem is for my son, to whom almost did not survive when he was born. My son is 8 1/2 months old, he and I almost died due to HELLP syndrome. Thanks to God and all the prayers, we are still here today. Both of our children are huge miracles from God. My children are a true inspiration for me, they have shown me the ways of God. I now write most of my poetry to or about my wonderful children. My son-Lars was born 3 weeks early, my husband and I had already decided that if he was a boy, we would name him Lars after his Great Grandpa Larson who has passed away. Well, Lars was just meant to be born 3 weeks early because he was born on November 10th and that is his great grandpa Larsons birthday! I did not have any signs of HELLP syndrome until after I delivered my son and was in the hospital for 3 weeks after I had him. I thank God to the fullest for blessing us with life after everything that has happened. I pray for all of you who have survived HELLP syndrome and also those who have lost loved ones due to this horrible syndrome. May God bless you all in everything that you do.
My Son
When I look into your eyes, I thank God that you are alive.
As I cradle you in my arms, I thank God that we both survived.
When I lay you down to nap, I pray to God to keep you safe and sound.
God has special plans for us, hold my hand son as we find the way.
I love you my very special son, together we are miracles.
Note: Lindsay has written other poems which are available for viewing at www.poetry.com under Lindsay Mae Butler and Lindsay Butler.
From Loraine
I am finding this hard to write and close to tears, having had HELLP in 2002 and nearly not making it. I was lucky to have a son who is thriving. I read the entries from those who have gone for a second pregnancy, hoping it may help me. I am so scared about doing it again but but would love to have another. My husband found it very hard watching me nearly die (especially as he is a doctor) and still finds it hard to talk about. He would support me if I wanted to. I wish there was a magic test to say Go for it.
I want to try again but have my little boy to think of and husband, if it all goes pear shaped. I think the web site helps you to get things off your chest to people who have been there or are going through the same as you.
From Candice
ccarta-myers@adelphia.net (East Berlin, PA) My husband and I are considering having another child. Do you know of any doctors in central PA who specialize in HELLP Syndrome victims? I developed HELLP Syndrome in my sixth month and had my daughter a month early. My OB did not seem to know very much about it and told me it would go away immediately after birth when actually I did not fully recover until a year later. The nurses at the hospital I delivered in were so uncaring, I'm feeling a little uneasy about going back there. The areas I live close to are Harrisburg, Camp Hill, and York, PA. I appreciate any information you can give me. The monthly newsletter has been such a source of inspiration, and education for me. I'm very grateful for it.
From Jennifer
Jennifer_Edwards@elementk.com I believe I was one of your first newsletter subscribers. I felt it might be helpful to update folks with my situation. In 1995 I had severe HELLP and delivered my daughter at 29 weeks 2 1/2 pounds. She is 9 years old now and doing terrific (a gifted student,.I might add). During the past 9 years I met with various high risk practitioners who "counseled me" on the "chances" this may happen again. And truth be known...they just didn't know. Some said 20%, some said 60% that it would reoccur. So we educated ourselves and came to the conclusion .it would be better for me /my husband and my daughter (because they all wanted me around) to adopt! In May of 2003 we adopted a 2 1/2 year old boy from Guatemala. And I must say.it has truly been a blessing and a wonderful option!!! Also, for those who are interested,.there are 500,000 orphans in Central America...one of them could be yours!
From Laurie
lj95@hotmail.com (Park Ridge, NJ) My daughter Caitlin was born 8 weeks early on 10/1/03 due to pre-e and HELLP. She weighed 2 lbs 11 oz and is now a healthy 1 year old - almost 16 lbs. We are having her birthday party this Saturday! I still do want to try for another child down the road and reading the other members' stories gives me the confidence that you can have a successful 2nd pregnancy - and hopefully HELLP-free!
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