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From Denise
Dggarcia@aol.com (Corpus Christi, TX) It's been a long time since I've connected with this group, as my life has taken me in different directions. But I am moved to write to ask this question of the former HELLP moms/babies out there -- How many former HELLP babies are now diagnosed with autism spectrum disorders? The reason I ask is that my former HELLP babies (twins now 6) are (Aspergers), and some of the cutting edge theories about what causes autism draws a connection between injuries prenatally, maternal autoimmune disorders (like HELLP?), and children having liver problems and weakened immune systems, among other things. (I'm not doing it justice, but a great book that describes the various causes is "Conquering Autism: Reclaiming Your Child Through Natural Remedies" by Stephen B. Edelson, M.D.) I have my own theory that children whose moms had HELLP are more inclined to have autistic spectrum disorders, and if this connection can be made, there are probably things that parents can do to curb these affects from manifesting (among others, delaying vaccinations until the children are older). Does anyone know of any studies on this, and is it possible to conduct an informal poll? Thanks in advance.
From Lori
lorijr@ktis.net (Auxvasse, MO) I had HELLP Syndrome and my daughter was born on June 22, 1995, at 28 weeks. I am an aspiring writer and am currently working on an article I hope to submit in the near future. I would like to share Taylor's story and include information about the Society. Would that be acceptable? Also - I would appreciate it if you could include a notice about this article in an upcoming newsletter. I would love to hear from others who would be willing to share their stories in an article. You can include my email address and my snail mail address:
Lori Robinett
1880 State Route E
Auxvasse, MO 65231
Thank you!!
From Jakki
jakki.brown@btinternet.com I have a question. I had HELLP syndrome in week 34 of my pregnancy with my daughter. We have since found out that she suffers from a rare chromosome abnormality called Angelmans syndrome. We are finding this a very difficult and distressing time as she may never be able to speak and has severe learning difficulties. I am interested to know if any other sufferers of HELLP syndrome have had children with similar problems? I look forward to hearing from you.
From Anjali
hammondski@hotmail.com (Salt Lake City, Utah) I had HELLP Syndrome with my first child born at 26 weeks and only one pound ten ounces. He is now a healthy and happy 7 year old. I then went on and bravely had a second child who is now 4 1/2 born without any complications. I took a baby aspirin a day with that pregnancy and feel very lucky to have had a full term delivery. Recently, I have developed a portal vein thrombosis (blood clot in my portal vein) and I am wondering if anyone else has had HELLP in the past and then later developed a portal vein clot. I have a history of higher platelet count my whole life (which was useful during my HELLP Syndrome) and I have been on birth control pills for at least ten years. Thank you for your site and work in this area.
From Leslie
MLCinOP@aol.com (Overland Park, KS) I just got back from Gabriel's 4 mo checkup. As you guys know he was eight weeks early, so we have to adjust for him being early. I can't believe my little guy who weighed 4 lbs at birth and at his lowest was 3 lbs, 10 oz weighs 16 pounds. If you adjust his age, he's off the charts for his weight and head size and 75% percentile for height. The only thing wrong is that he doesn't hold his head up on his tummy and it's wobbly if you're holding him. The doctor said he has torticolis (sp?) which is a stiff neck and because of that and his head being so large he can't hold up his head. So she is having Kansas Infant Toddler Services send a Physical Therapist out to work with him on that while he's still little. We used KITS before with Claudia for 15 mos with Occupational Therapy, so I'm familiar with them. Luckily it's a free service for babies at risk, so we don't have to worry about extra medical bills.
From Cathy Del Pui
cblonde2001@juno.com (San Antonio, TX) I was wondering if anyone has tried to have a baby by surrogate after suffering HELLP Syndrome. I lost Zachary in Dec 2001 and Abigail in Feb 2003. Both were 24 weeks gestation and I nearly lost my life with Abigail. My OB and Perinatologist told me it would be best if I did not attempt another pregnancy since I had less than 10,000 platelets with Abbey. They checked me regularly and as soon as the pains started, they saw me each once a week and did blood panels constantly. I even had my gall bladder out at 23 weeks, because that was what was the cause of my abdominal pain this time around. My OB said that she isn't sure if the same reaction would happen in someone else since there would still be the same chemical makeup. From what I understood, I thought it was just my body's way of reacting to the pregnancy, not the chemical makeup. I just wanted to know if anyone else had tried surrogacy or had any info on the effects and potential risks I could be putting a surrogate mother in. Thank you in advance for any information any can give me.
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