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We have research in place with the University of Cincinnati. Please visit our web site home page to find more information. Please click on Research with the University of Cincinnati. We are also working on future genetic testing. You can complete a form on our web site if you would like to be part of this. Just click on Future Genetic Testing and it will take you to a form that you can complete and send to us. This will be in partnership with the University of Southern California, Keck School of Medicine.
Neither of these research projects involves you going to these sites in person.
Research for the University of Cincinnati:
Under federal law, researchers are required to get written permission to look at a prospective participant's health information for research study. Because you have shown an interest in our research project (please refer to study protocol), and are willing to send us your health information (medical records) voluntarily, you are not required to sign any release form to participate in our research project.
How Do We Protect Your Privacy?
It is our privacy policy that any personal and medical information you provide will remain confidential. Dr. Helen How, the principal investigator, and Drs. Baha Sibai and Caroline Stella, Co-investigators, will use the information obtained from your medical records for this research project.
What Will We Be Looking At and Why?
We will be looking at the following information to see if your HELLP diagnosis was accurate and how frequent it occurs in your subsequent pregnancies (if applicable) as well as how it affects your future health. Therefore, any new major medical diagnosis after your pregnancy with HELLP syndrome should be reported to us by sending us your medical record. This will help us answer questions, which no one knows at this time.
Is My Permission Voluntary?
You are not required to sign any release form. Sending your medical records to us means that you are giving us permission to examine your record. You can personally send us your medical records or request the doctor's office or medical record's staffs to send your record directly to us. The doctor's office and medical record's staffs usually do not charge you a fee if it is sent directly to another physician. You need to sign a release form to give permission for the doctor's office or medical record's staffs to send us your medical records.
Dr. Helen How's address is as follows:
University of Cincinnati
Department of OB-GYN
Medical Science Building, room 5463
231 Albert Sabin Way
Cincinnati, Ohio 45267-0526
We thank you for your participation in the research project.
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